A dramaturg tries to make sense of (or at least laugh at) her Type 1 Diabetes, which has more plot twists and unexpected surprises than any stage play.
Tuesday, March 18, 2014
At Seventeen (Mice, Mice, Baby)
I was going to say hi, diabetes diagnosis, I hate you. In some ways (many ways) I do hate diabetes as much or even more than I always have. It's pretty awful. The roller coaster ride, the wheel of fortune, the tower of terror...I could just keep naming rides and metaphors, but you get the picture. Diabetes is unpredictable and wild. It's just like a seventeen-year-old (or, as I imagine a wild seventeen-year-old to be; diabetes rebellion aside, my teenage wildness looked a lot like mildness).
My D is seventeen
I've had some very bad years
I've had some much better years
They happened very recently
I found the D-O-C
Much lower A1c's
My D is seventeen
On the other hand, my D has been the biggest learning experience of my life, and I've always said that I love learning! My D has made me a ton of friends, and I love friends! My D has given me so much to write about, and I love writing! It's funny; if a genie materialized before me right now and told me he could cure me, I would say yes in an instant, but if he said "I can make it so you never had diabetes in the first place," I don't know what I would say. It's made me a better, more controlled, more compassionate person. In some ways, it's made me special. I still think it had a hand in getting me into my first-choice university, which was an incredible experience and has affected my life in immeasurably positive ways.
I learned the truth at seventeen
That while D sucks, you have the means
To only suffer, or to smile
We're only on this Earth a while
In any case, today I choose to smile. Here is a cupcake my sweetheart gave me for my Diaversary (Bailey's frosting and chocolate cake). He's a guy who's in it in sickness, in health, and in cupcakes! I love him very much.
When I was newly diagnosed, I was told that there would likely be a cure in five years. I know most of us in the same boat could finish that sentence. I really held on to that idea. In a way, my first five years (until I actually turned seventeen) of diabetes were me in denial, trying to mark time until the cure was found before I went off to university. In a way, the healthiest (though most depressing) thing I've ever done is to basically "Let It Go" - let go of a hope for a cure in my lifetime. I'm not going to say I wouldn't welcome it, but I want it to be a nice surprise, not a "what took you so long?" To that end, I know we're all sick of seeing studies that report "A CURE!" - in mice only. As a Diaversary present to myself and you, I present my most elaborate parody ever. Please put on Vanilla Ice's seminal tune, "Ice, Ice, Baby," and rap: "Mice, Mice, Baby." I love you guys! I don't love fake cures.
Yo, D-O-C, let’s kick it!
Mice, mice, baby, mice, mice, baby
All right, stop. Commiserate and listen
I know these scientists are full of ambition
Ideas grab a hold of them tightly
One experiment and they’re on the nightly
News – it’s a cure? Yo, we don’t know
Though I know we want to think so
It seems so extreme, a dream too true to handle,
But please, remember to breathe, it’s a scandal
Calm down. Don’t rush the lab rat room
It’s hard to think when some hope pierces the gloom
But deadly, to wish instead of taking care of me
Less than five years, who cares about A1c?
Hate D or leave D, you still better play
Don’t put off to tomorrow the tests of today
Diabetes is a problem and maybe they’ll solve it
But this cure won’t do much unless they can evolve it
MICE, MICE, baby
They cured some MICE, MICE, baby
They cured some MICE, MICE, baby
Not humans, mice, mice, baby
Now that conclusions are jumping
With the hype kicked in, the media are pumping
Make a quick point, they anoint, but they’re fakin’
It’s as much of a cure as a diet of bacon
And we’re equally burned, ‘cause they show us a symbol
Of progress when evidence isn’t so nimble
And a high horse is ridden by those in the know
Breaking the news to the newbs caught in the show
It’s just “cure” v. 5.0
How much smoke can a headline blow?
If I gave this cure a try, then my meter would say HI
Not a chance, I just have to keep getting by
Diabetes will pursue me and I can’t stop
A mouse won’t live five years, me neither, I’ll drop
Then I’ll be dead.
Yo – so you know what, buddy? I appreciate the studies.
I’m glad the tiny beasties no longer have the ‘betes
No more sad squeaky sugar-filled mousy entreaties
But my body’s not a mouse’s, a mouse’s isn’t mine
And when is the day when they tell me I’M fine?
I feel like a chump with my ear to the wall
Running after a cure like a mouse stuck in a ball
Platitudes ring out like a bell
It’s hell, just a shell, well, don’t fall under the spell
Falling hopes are dashed real fast
Optimistic’s just sadistic and I’m running out of gas
My bumper needs a jumper ‘cause the deck seems stacked
I’m just trying to survive with a pancreas that’s cracked
D-Police on the scene, you know what I mean
They pass judgment, act like I’m a mean sugar fiend
Diabetes is a problem, but that doesn’t solve it
And this cure won’t do much unless they evolve it
MICE, MICE, baby
They cured some MICE, MICE, baby
They cured some MICE, MICE, baby
Not humans, mice, mice, baby
Take heed, because I’m a high glucose poet
If this applies to me, well, then why don’t you show it?
It’s the D-O-C’s town, and we’re going to make a sound
Enough to shake and kick holes in the ground
‘Cause there’s fast, safe and cheap, or there’s slow, drag, and kill
My BG is always changing but advances seem so still
Strip safety reform, that’s a hell of a concept
Not sexy, but fixing “the D got her as she slept”
The closed loop system, with low suspend will aid
This ninja-like feeling of life lived on a razor blade
So sharp, other people say “damn,
How you measure out a life in shots and milligrams?”
I keep my composure with goals, some strict, some loose
If I’m high, then I’ll cry, if I’m low, I’ll drink juice
Diabetes is MY problem, and I’m going to solve it
With my friends worldwide, we’re going to evolve it
NOT mice, mice, baby
They cured some mice, mice, baby
That must be nice, nice, baby
But we’re not mice, mice, baby
No more advice, vice baby
‘Cause there’s a price, price, baby
We’re STILL not mice, mice, baby!
Not quiet mice, mice baby
Yo, man, let’s get out of here! Word to your support network!
-Ilana
Tuesday, March 11, 2014
Strips Do Lie (Stripkira Feat. Highclef Jean)
Saturday, May 18, 2013
Ode to an Insulin Pump (D-Blog Week Day 6: Diabetes Art Day)
This is tough for me, as most of my blog seems to already be diabetes art of some kind! You could check out the beginning of a mystery novel here, song parodies here and here, or the beginning of a diabetes Law and Order episode here (I will finish that someday, but I don't have the energy right now)! I get intimidated by art prompts, as I consider myself (or have been considered to be; sometimes I doubt myself) some kind of writer. I actually have a short diabetes-based relationship play I wrote back in mid-college when I was trying to figure things out for myself; I'd post it but I'd probably embarrass myself. So today you get something quick and dirty: a Shakespearean sonnet parody (okay, I might be one of few people who call a Shakespearean sonnet parody quick and dirty). Diabetes seems to lend itself to Shakespeare; it's full of both wild comedy and high tragedy. If you want to quibble about the occasional extra syllable leading to a "feminine ending" of a line, I say it adds to the analysis, as a "feminine ending" often relates to indecision or distress. Anyway, now that I've analyzed myself, I leave you with:
Ode to an Insulin Pump
Shall I compare thee to a pancreas?
Thou art external and more temperamental
Rough numbers do shake me as the hours pass
And homeostasis, achieved, seems incidental
Sometime too high the glucose rises up
And my once-pale complexion turns to rose
Or dropping fast, an orange-juice-filled cup
Must quell my shakes ‘fore everybody knows
Thy Bolus Wizard magics up a dose
Thy Basal, steadfast on its course it stays
And though you help me as I keep you close
Still, I feel you are shortening my days
My true one vanished, leaving but my fears:
That cruel promise, to “wait but five more years!”
-Ilana
Sunday, April 7, 2013
Di-ronic
Friday, November 16, 2012
Law and Order: Special Pumper's Unit
Monday, April 23, 2012
The Shakesbetes Rep Company
‘Betes Andronicus: Tamora, upon hearing that the pie she has consumed was made from his own children, freaks out because she now has no idea of the pie’s carb count.
A Midsummer Night’s Low: four young people in love bitchily stumble around making poor choices as if drunk, for no apparent reason.
Hancet: Suspicious of the circumstances surrounding his father’s death, a young man bluntly needles everyone around him, running several of them through.
As You Spike It: Rosalind is a pizza, but she dresses up as salad to get closer to Orlando. He can’t figure out why she makes him feel so funny inside.
Twelfth Night Correction: A mother tests the BGs of her twin T1 children, Viola and Sebastian, twelve times over the course of the time she should be sleeping. After mistaking their readings for one another’s, she gives up and throws herself into the sea.
The Winter’s Fail: Furious at his meter’s inability to work in cold weather, Leontes orders it to be destroyed, but comes to repent his jealous decision. Features the famous stage direction: Exit, pursued by a carb.
Oh Hell No: Jealousy over who has the lower A1c grows toxic, and results in strangulation.
King Liver: When a ruling organ goes to divide his inheritance, he asks each hormone how much she loves him. Insulin says, “I love you according to my bond, which makes you more permeable to glucose and activates enzyme systems, helping you uptake and properly use sugar.” He disinherits her.
The Error Fives of Windsor: A madcap blood glucose sex comedy, wherein Falstaff fails to get either the girl or a correct reading.
The Merchant of Medicine: A pharmaceutical company demands its pound of flesh when Antonio cannot produce his insurance policy. (The Merchant of Menace?)
Much Ado About Nothing: Is Beatrice having complications, is she Real People Sick, or is she just tired? Whatever it is, Benedick is going to get an earful.
The Comedy of Errors: When a pair of twins, one a T1 and one a T2 diabetic, are mistaken for each other, “hilarious” misconceptions and judgments ensue.
Love’s Labour’s Lost in Measure for Measure: An A1c just won’t come down, no matter how much work our protagonist puts in to a regimen.
Something tells me funding for the Shakesbetes Rep Company may be limited. But that’s okay. All’s well that ends well.
-Ilana
Wednesday, April 18, 2012
Coming to a Bestseller List Near You
Find thrills, chills, highs and lows with: The Insulin Thief
John’s pancreas might be firing blanks, but the gun he carried shot the real kind. Other men have their hearts stolen, he mused. Why couldn’t I have been so lucky? There was nothing more to say – his insulin was gone, and nobody had seen it go; or if they had, they weren’t talking. To make matters worse, he was getting low on cash – he seemed to be bleeding it out even faster than the stuff that caused his meter to beep.
Joe was dealing with an insulin thief, and he wanted answers, sooner rather than later; the thief had worked fast, and for all he knew, was long gone. Half the time he couldn’t tell if he was shaking with rage or hypoglycemia.
Joe’s finger tensed on the trigger of Lancet, his beloved .45. Big Pharma knew something, he was sure of it. He could never quite figure out Big, or what he was up to. The man certainly loved his excess, and never passed up an opportunity to shake Joe dry. Of course, he had dirt on Joe – who didn’t? But to Joe, the brazen blackmail meant Big was scared; as usual, he was slowing down an investigation. He had pressed this notion the last time, and it had not gone over well. “Blackmail is such an ugly word,” Big crooned, almost lovingly. “I prefer to call it…insurance.” And to show he wasn’t bluffing, he raised Joe’s “premiums.” Hans Langer, Big’s cartoonishly German assistant, had escorted Joe out. Joe saw the briefest flash of pity in the man’s Teutonic visage, and as he was shoved through the golden door, he thought he heard the briefest, accented whisper…”you’ll find what you seek…on the islet.”
What that meant, Joe had no idea. But he couldn’t pass up even the barest hint of a lead. He was running out of glucose tabs, and he was running out of time.
He was going to find that insulin thief, and he was going to make him pay.
-Ilana
Friday, April 13, 2012
A Breakup Song
Once in a while, I ask myself, “Self, how do I launch you into international music fame?” Successful musicians capture the attention of their audience by singing about relatable and universal themes. Adele, I’m told, did spectacularly well with a heart-wrenching album full of break-up songs. I was thinking about this. Now, my audience here is primarily diabetics and those who love them. So what better album to drop than a bunch of old-fashioned pancreas break-up songs?
My first single off the album is “The Pancreas I Used To Know,” with very sincere apologies to Gotye’s “Somebody That I Used To Know” (original song here, if you’re one of the two people who haven’t heard it- see what I mean, breakup songs = international fame!)
Now and then I think of when we were together
You self-corrected for each piece of cake or pie
Told myself I’d always be this free
And you’d be a functioning part of me
Now high blood glucose causes aches that might dismember
You can get addicted to a functioning endocrine system
It was a thing I didn’t think I had to attend
But with a random fasting test
I knew you had been laid to rest
And I’ll admit that I freaked out when we were over
But you didn’t have to cut me off
Crap out like I just malfunctioned and then you were nothing
I didn’t ask for constant love
But right now you’re trying to kill me and that’s kind of tough
You didn’t have to stoop so low
Now my glucose is so high you really changed my numbers
I really don’t need that, oh
Swearing at that pancreas I used to know
Think about that time when my immune system screwed me over
Other people thinking it could only be what I had done (that poor Type 1)
No, I don’t want to live this way
Poking at my body every day
Why did you have to up and go?
I can’t help but feel betrayal from this pancreas I used to know
But you didn’t have to cut me off
Crap out like I just malfunctioned and then you were nothing
I didn’t ask for constant love
But right now you’re trying to kill me and that’s kind of tough
You didn’t have to stoop so low
Now my glucose is so high you really changed my numbers
I really don’t need that, oh
Swearing at that pancreas I used to know
Swearing at that pancreas I used to know
…I think I’m going to have to work a bit harder for international fame. Maybe BlΓΌnt Lancet will sign me?
-Ilana

